Fantastic Pains and How We Hide Them
Join on us on our individual journeys living, coping, and laughing at our lives with Ehlers Danlos Syndrome or EDS. We intend to raise awareness about invisible Illnesses, commiserate with fellow chronic disease friends, and share our own coping strategies and advice we have accumulated on our respective journeys
Episodes
Episodes
Saturday Apr 20, 2024
Diagnostic Saga
Saturday Apr 20, 2024
Saturday Apr 20, 2024
The journey of a diagnosis is not always a straightforward one. Sometimes we have a diagnosis that later, under a different medical lens, gets narrowed down to something else than what we anticipated. It's not cookie-cutter for how we're supposed to feel about a change in diagnosis let alone the emotions attached to the start of the journey with the new diagnosis and/or criteria.What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ
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chill. by sakura Hz https://soundcloud.com/sakurahertzVintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________
You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter:https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/
#Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlossyndrome #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks
Saturday Apr 13, 2024
Medically Marooned
Saturday Apr 13, 2024
Saturday Apr 13, 2024
Story time!Today's episode revolves around the trigeminal neuralgia-esque issue's our dear NotChris has been having for some time now. In addition to discussing the symptoms and the struggles of that, our focus is also brought the neglectful treatment and care she's been receiving.What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ
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chill. by sakura Hz https://soundcloud.com/sakurahertzVintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________
You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter:https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/
#Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlossyndrome #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks
Saturday Apr 06, 2024
Trauma-Versary
Saturday Apr 06, 2024
Saturday Apr 06, 2024
A trauma-versary is the anniversary of a traumatic event, in our case traumatic medical events. We go into the talk about the event and the impact it's had in echoed-trauma on the anniversary of the traumatic event coming up.What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ
___________________________________________________________________
chill. by sakura Hz https://soundcloud.com/sakurahertzVintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________
You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter:https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/
#Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlossyndrome #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks
Saturday Mar 23, 2024
Doctor Shame
Saturday Mar 23, 2024
Saturday Mar 23, 2024
Not all pain is identical but trying to get it treated can often be more difficult it can be to get any of that communicated to our doctors. What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ
___________________________________________________________________
chill. by sakura Hz https://soundcloud.com/sakurahertzVintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________
You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter:https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/
#Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlossyndrome #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks
Saturday Mar 16, 2024
Just... Pain
Saturday Mar 16, 2024
Saturday Mar 16, 2024
Sometimes with pain things are just.... that. Not everything is cookie-cutter when it comes to that or zebras on the whole. No two pains are exactly the same.What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ
___________________________________________________________________
chill. by sakura Hz https://soundcloud.com/sakurahertzVintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________
You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter:https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/
#Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlossyndrome #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks
Saturday Mar 09, 2024
You're NOT your body!
Saturday Mar 09, 2024
Saturday Mar 09, 2024
This week we of course have our check-in -- we also discuss the separation between our 'selves' and our 'bodies'. Not something most neurotypicals we've talked to have understood but zebras can understand!What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ
___________________________________________________________________
chill. by sakura Hz https://soundcloud.com/sakurahertzVintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________
You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter:https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/
#Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlossyndrome #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks
Saturday Feb 24, 2024
Value Yourself
Saturday Feb 24, 2024
Saturday Feb 24, 2024
We talk a lot about interacting with the non-chronic world. This episode we talk about the value of ourselves, and the self-talk struggles of the ill world. What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ
___________________________________________________________________
chill. by sakura Hz https://soundcloud.com/sakurahertzVintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________
You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter:https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/
#Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlossyndrome #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks
Saturday Feb 17, 2024
Illness Isolation
Saturday Feb 17, 2024
Saturday Feb 17, 2024
Re-Re-Rearranged the set! This episode we go over the struggle with isolation that our illnesses cause... and the active struggle we go through with the people we don't see very often versus the ones that can actually understand our situation.What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ
___________________________________________________________________
chill. by sakura Hz https://soundcloud.com/sakurahertzVintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________
You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter:https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/
#Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlossyndrome #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks